Mome reads Mommy, My daughter's way to spell it when she was younger... It stuck. My son calls me Mome... just like it looks. I now sign all my notes to them "Love, Mome". It's our inside secret and makes them smile. I always want them to smile.

Sunday, July 20, 2008

Caiden Webb

Langerhans cell histiocytosis
From Wikipedia, the free encyclopedia

Langerhans Cell Histiocytosis (LCH) is a rare disease involving clonal proliferation of langerhans cells, abnormal cells deriving from bone marrow and capable of migrating from skin to lymph nodes. Clinically, its manifestations range from isolated bone lesions to multisystemic disease.
The disease is part of a group of clinical syndromes called histiocytoses, which are characterized by an abnormal proliferation of histiocytes (an archaic term for dendritic cells and macrophages). These diseases are related to other forms of abnormal proliferation of white blood cells, such as leukemias and lymphomas.
Langerhans Cell Histiocytosis used to be called histiocytosis X, until it was renamed in 1985 by the Histiocyte society.

Hello Everyone!! Welcome to the site for our Miracle Baby Caiden Webb
He is a miracle baby in every sense of the word....he has had a difficult start, from being growth restricted in the womb, to dealing with the rare disorder, Langerhan Cells Histiocitosis after birth. God has blessed us, despite all of these obstacles!
My husband and I welcomed our first child, Caiden, on August 30th, 2006. He was a preemie born just about a month early weighing only 4lbs at birth. I had a very difficult pregnancy which required me to be on bedrest for 6 months! Caiden was growth restricted as a result of my complications during pregnancy.
Caiden spent a few days in the NICU but he was a fighter from the start and he was discharged with me from the hospital. I also spent sometime in the ICU.
In December of 2006, Caiden was diagnosed with Langerhan Cells Histiocitosis after having a biopsy sent to the lab because he had a mysterious rash that refused to go away.
After seeing a hemotologist/oncologist, and following several tests, we were told that Caiden's LCH was localized to the skin, but that he would require monitoring every month and testing every three months. Caiden's LCH still seems to bother him from time to time and we often have to take him to the Doctor for medications to relieve the itching and irritation caused by the LCH.
Caiden is now 10 months old and he is still pretty small, he weighs 17lbs 5 oz, but the Doctor's say that he will catch up.
God has truly watched over us during this past year which has been an extremely difficult one for us. We are blessed with a WONDERFUL family and Caiden is surrounded by so much love!
At times I become sad because it hurts me that Caiden has gone through so much, even in the womb!!!! but I have to thank God because Caiden is a miracle baby in every sense of the word!
He was delivered via C-Section, and the umbilical cord was wrapped around his neck three times!!....he is definitely a fighter and I thank God for our precious miracle baby
Won't you check out Caidens page and do whatever you can to help?

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