Mome reads Mommy, My daughter's way to spell it when she was younger... It stuck. My son calls me Mome... just like it looks. I now sign all my notes to them "Love, Mome". It's our inside secret and makes them smile. I always want them to smile.

Thursday, July 24, 2008

Jessie Hall

I've spent the last 3 days reading the blog of a 6 year old little girl who in the span of 10 months, went through more than most of us will in a lifetime.  She was diagnosed with Rasmussen's Encephalitis and recently had the entire right side of her brain removed.  Yes, you read that correctly, the entire right side of her brain.

 

This little girl has brought together an entire community with her smile and spirit, and I could not stop reading her story during all the free moments I had over the last few days.

The disease is awful, the treatment, worse, and yet Jessie and her family have found a way to share their story as well as set up a foundation to help others who have gone through the same procedure. 

It is inspiring, humbling, and an incredible tale of one little girl and all the lives she has touched and will continue to touch as she grows.

Check out Jessie's blog as well  as the Hemi Foundation

Then get yourself to the Pinkalicious Boutique and order a bracelet or shirt to help the Foundation and support Jessie through hercontinuing rehab.

 

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